| See also the FMFcommunity RESOURCES page |
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| FAMILIAL MEDITERRANEAN FEVER |
Muckle-Wells Syndrome |
Still's Disease |
| GENETICS General definitions and understanding |
Periodic Fever, Aphthous stomatitis, Pharyngitis,
and cervical Adenitis |
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| Resources for Kids |
Behçet's Syndrome |
FCU |
| CINCA |
Melungeon? |
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| POLYARTERITIS NODOSA
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| Caveat
emptor: These links are provided for general information. FMFcommunity.org,
its creator and subscribers cannot vouch for the information contained therein.
There is no substitute for first-hand, well-informed medical advice and your own assertive self-advocacy. |
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MELUNGEON? Its a new word to me, also. Read about the The Melungeon Health Education and Support Network including information about FMF and Behcet's Disease at: http://www.melungeonhealth.org/ FMF glossary and vocabulary: http://www.ornl.gov/TechResources/Human_Genome/publicat/primer2001/glossary.html#germlinegeneticmutation FMF basics and history: http://www.geocities.com/lifewithfmf/ re: Discovery of (one of the) FMF genes: http://content.nejm.org/cgi/content/short/337/21/1548 Objective description, diagnosis and treatment http://www.geneclinics.org/profiles/fmf |
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Helping children and teens with chronic illness: http://www.kumc.edu/gec/support/young.html |
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Here's a scientific introduction: http://orphanet.infobiogen.fr/data/patho/GB/uk-MWS.html Muckle-Wells syndrome Information Page: http://www.diseasesdatabase.com/sieve/item1.asp?glngUserChoice=30159 D I S E A S E: Muckle-Wells syndrome: http://www.orpha.net/consor/cgi-bin/OC_Exp.php?Lng=GB&Expert=575 |
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Yahoo! sponsors a CHAT on PFAPA at: http://groups.yahoo.com/group/Pfapa/ See this 2002 professional article on PFAPA: http://www.fetalneonatal.com/cgi/content/full/archdischild%3b86/6/434 |
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Visit the Behcet's Syndrome Society links page: http://www.behcets.org.uk/ Here's a physician's definition: http://www.medstudents.com.br/reumat/reumat3.htm This page offers many books and resources for persons living with Behcet's: http://www.behcetsdisease.com/books.htm |
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For more info on Still's Disease, try: http://www.arthritisinsight.com/medical/disease/stills.html Visit the International Still's Disease Foundation (ISDF) at: http://members.tripod.com/stillsfoundation/ Visit the ISDF's Still's Disease links page to learn much more at: http://members.tripod.com/stillsfoundation/links.htm |
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Visit HIDS.net at: http://www.hids.net/ and see the HIDS.net What is HIDS page at: http://www.hids.net/patient/whatishids.html For more scientific descriptions and links, go to: http://www.diseasesdatabase.com/sieve/item1.asp?glngUserChoice=30161 or http://www.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?260920 |
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These pages offer excellent
(if scientific) means of distinguishing among
the several autoimmune hereditary fevers: http://padeh.net/student/Hereditary_autoimmune_fevers.htm http://fmf.igh.cnrs.fr/infevers/page1.html |
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NEW!! 02.2006: http://www.nomidalliance.net
"A website and new foundation for families, patients and friends with
NOMID/CINCA, Muckle Wells and Familial Cold Autoinflammatory (aka Familial
Cold Uticaria) Syndrome. |